Read Time: 5 minutes
Caution: This story contains tongue cancer pictures, before and after surgery. Please use your best judgment.
Karen Jensen has dedicated her life to helping others. A social worker for more than two decades, she previously worked at Huntsman Cancer Institute, providing support and counseling for patients adjusting to a diagnosis.
鈥淲orking with families, you encounter people with anxiety and others suffering from depression. Social workers try to meet their basic needs鈥攁ny way we can help be an advocate,鈥 Karen says.
Karen鈥檚 decision to become a social worker was solidified when her father was diagnosed with Hodgkin lymphoma in 2000. 鈥淭he hospital social worker and chaplain helped my husband and me move our wedding up so my dad would be a part of it. After this experience, I knew I wanted to be in medical social work. It was so profound that the two of them and the hospital staff were able to take this challenging time in our lives and intersperse it with some joy.鈥
In August 2021, Karen鈥檚 connection with cancer took another turn when she noticed a bump on the side of her tongue. 鈥淚 thought I bit it and it just never went away,鈥 she says.
During a doctor鈥檚 visit a month later, Karen mentioned the bump to her primary care doctor. She was immediately sent to an ear, nose, and throat specialist. 鈥淚 saw Marie Bergomi, FNP, BC, and she said we needed to do a biopsy. I had it that afternoon. Everything came out of left field.鈥
鈥淎nything that lingers for two to three weeks, should get checked. If you have a sore, growth, mass, lesion, anything bothering you, then speak up.鈥
鈥擱ichard Cannon, MD
The biopsy revealed squamous cell carcinoma. Squamous cells are thin, flat cells found in the tissue that forms the surface of the skin and the lining of hollow organs and respiratory and digestive tracts. Most cancers of the head and neck are squamous cell carcinomas.
鈥淚 knew about the Huntsman Cancer Institute environment from working here. It is a collaborative setting where each team supports each other鈥攁 very welcoming and genuine place. So even though it was terrifying to think something was growing in my throat or mouth, I was lucky because I was around the right people. We are in certain places at certain times for a reason.鈥
Karen had scans done of the inside of her mouth and the doctors covered every scenario. 鈥淭hey took the time to make sure I was comfortable.鈥 Radiology called and said they were ahead of schedule and could get Karen in for a 鈥Richard Cannon, MD, told me the type of surgery he anticipated doing. He and his nurse, Tina Dunn, were on top of it, reassuring, answering all my questions.鈥
Karen was scheduled for a few procedures. First, a neck dissection, where lymph nodes would be removed and tested for cancer. Then, a partial glossectomy to remove the cancerous tissue on her tongue. Finally, the possibility of reconstruction called a free flap of her tongue might have to occur. This would include taking skin and fat tissue, as well as veins and arteries, from the radial part of her forearm, used to create a new tongue.
鈥淥ral cavity cancer is one of the most common things we see,鈥 Dr. Cannon says. 鈥淟uckily, hers was small and had not spread. Being at a cancer specialty hospital, we often see people who are further along and have been referred by someone because we have the resources to handle these types of surgeries. Chemotherapies are not as effective for oral cancers, so typically patients follow up with us to ensure nothing comes back."
鈥淭hings moved so quickly,鈥 Karen adds. 鈥淚 didn鈥檛 have time to be worried or scared about cancer or the procedures. There was no sitting around and waiting. I can鈥檛 imagine how much anxiety others must feel between the time of diagnosis and surgery.鈥
鈥淚f my story gets one person to find oral cancer early, then this hasn鈥檛 been for nothing. That鈥檚 part of being a social worker. I just want to help others.鈥
鈥擪aren Jensen
Fortunately, the surgery went well. Only a small portion of Karen鈥檚 tongue was removed and the lymph node biopsy came back negative, meaning the cancer had not spread. Three months passed. Another clean scan. She will continue to have scans regularly.
鈥淜aren is an amazing person,鈥 Dr. Cannon says. 鈥淚 knew her before the surgery because she shared an office space at Huntsman Cancer Institute with our former social worker. She has this bubbly personality. You never want one of your friends to have to go through something like this.鈥
Karen was concerned about her ability to talk after surgery, but the doctors encouraged her to speak right away. 鈥淚 was discharged after a day or two and only out of work for a month,鈥 she says. 鈥淚 just rested. I didn鈥檛 need a trach, a feeding tube, anything.鈥
The first week home from the hospital, Karen鈥檚 diet consisted of soft and mushy foods. 鈥淭here were a lot of cream soups and purees, Greek yogurt, then I moved up to mashed potatoes and scrambled eggs. Luckily, my husband is a good cook.鈥
Speaking of her husband, Karen credits him for his incredible support. 鈥淲e were high school sweethearts and have been married for more than 20 years, so he knows me well. He said, 鈥楶ump the brakes, wait for the doctor,鈥 when I was terrified at the beginning. My daughter needs her mom. I鈥檒l be damned if wasn鈥檛 going to be there for her.鈥
Due to residual numbness, Karen continues to do tongue exercises and swallow rehab. 鈥淐are has been outstanding. The hospital staff is great at making sure I am comfortable, drinking enough fluids, not in pain.鈥
When asked about what she would like to share with others, Karen recommends getting checked if there is something that concerns you. 鈥淚t鈥檚 better to have someone look at it. Don鈥檛 let it become a major problem.鈥
鈥淎nything that lingers for two to three weeks, should get checked,鈥 Dr. Cannon says. 鈥淚f you have a sore, growth, mass, lesion, anything bothering you, then speak up. Go to either your dentist or doctor and get it looked at.鈥
Oral cancers Americans each year, but Karen feels this is still a cancer type not often talked about. There are no national standards for oral cancer screening, unlike breast, colon, and skin cancer. 鈥淚f my story gets one person to find oral cancer early, then this hasn鈥檛 been for nothing. That鈥檚 part of being a social worker. I just want to help others.鈥
Learn more about cancer screening.